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Global Summit 2022
Health Data Forum
Global Hybrid Summit 2022
Quality of Health data, a dynamic complexity, a critical factor for catalysing smarter healthcare and efficient research.
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Porto's Declaration
This Declaration is the outcome of the Health Data Quality: a Dynamic Complexity conference held in Porto on 17 & 18 November 2022. The first international conference ever held on the topic of health data quality. The conference's objective was to demonstrate the dynamic complexity of high-quality data, as well as for both primary and secondary use. The Porto declaration is the result of an interactive conference with over 400 experts, representing multiple public and industry stakeholders, including key policy-making bodies such as the European Commission, the WHO and several national governments.
Develop and promote data quality standards and labelling
1. Decision makers and data scientists must work together – urgently – on a European standard for data quality labelling for primary and secondary data use, including provenance and FAIR reuse metadata.
2. Multiple healthcare and research funders must be prepared to co-finance the development of these data quality standards, their adoption into labels and products and the upgrade of deployed systems to ensure standardised, high-quality, high-value data for all.
Develop and certify digital health products to have data quality by design
3. ICT companies, especially EHR system developers, must build in "data quality by design" so that users find it easy to enter high-quality data and can tell the quality of the data they access and use.
4. ICT companies, especially EHR system developers, must value the quality, reliability, and trustworthiness of the health data their systems create and process, and certify their products against these criteria.
Require data quality labels within all digital health and research products
5. Member States and the European Commission must align their evidence requirements, including data quality requirements, for the approval of digital health innovations within European health systems.
6. Purchasers of digital health products and platforms, including EHR systems, must prioritize the adoption of systems that facilitate and label high-quality health data.
Invest in education and organizational change to improve data quality
7. Health and Finance ministries, health insurers and the data-using industry sectors must align their KPIs to join forces to invest in high-quality data in health-related activity. Furthermore, all stakeholders involved should engage in educating and empowering patients (and patient organizations) and the public to capture their data to a high quality and to encourage its use for purposes they support.
8. Secondary use stakeholders must urgently support healthcare organizations with the uptake of education and the organizational changes needed to improve data quality.
Develop the multi-stakeholder business case for high-quality data
9. Member States and the European Commission must develop and promote business cases for investment to improve health data quality.
10. Member States and the European Commission must establish co-financing frameworks to share out the necessary investments amongst the data user stakeholders
Edited by Jens Declerk, Conference Program Manager, i-HD The European Institute for Innovation through Health Data
If you want to adhere to this declaration and add your company logo, please contact the i-HD: here.
Call to action
This Declaration calls on all stakeholders to urgently collaborate on agreeing on the standards for data quality assessment, on scaling up data quality labelling of primary and secondary use data and on strategies for shared investments to improve the systems and delivering training to the personnel needed to ensure the best possible health data across Europe.
Program Committee
Summit organizing team
Geert Thienpont (Co-chair) i~HD, Belgium
Jens Declerck i~HD
Joao Fonseca (Co-chair) MEDCIDS, Porto University Medical School
Nathaniel (Nathan) Gatpandan i~HD
Paul Nunesdea (Facilitator) Health Data Forum
Pedro Cid Ferreira Digital Health Portugal
Rafael José Vieira MEDCIDS, Porto University Medical School
Rui Guedes MEDCIDS, Porto University Medical School
Altamiro Costa Pereira (Co-chair) Porto University Medical School, Portugal
Alexandre Guedes da Silva SPEM
Dipak Kalra (Co-chair) i~HD, United Kingdom
Hanna Pohjonen Rosaldo Oy, openEHR Ambassador, Finland
George Mathews Chief Medical Officer, Dedalus North America
Joseline Carías Galeano Recainsa, Guatemala
Karolina Mackiewicz ECHAlliance, Finland
Pascal Coorevits Ghent University, Belgium
Rajendra Gupta Health Parliament, India
Ricardo Cruz Correia Porto University Medical School, Portugal
Sergio Roll SOBRACIL, Brazil
Vanessa Candeias Policy Cures Research
Our program schedule
Contact us here to receive a PDF copy of the latest program schedule.
Event organizers:
col.lab | collaboration laboratory in association with MEDCIDS – Department of Community Medicine, Information and Decision in Health, Faculty of Medicine, University of Porto, i-HD The European Institute for Innovation through Health Data.
Summit secretariat
MEDCIDS – Faculdade de Medicina da Universidade do Porto
Rua Dr. Plácido da Costa, s/n 4200-450 Porto, Portugal
Jens Declerck
i~HD Data Quality manager
The European Institute for Innovation through Health Data
Email: jens.declerck@i-hd.eu