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Here, participants choose their track: the clinical frontiers of real-world evidence or the governance backbone of cybersecurity and privacy. The goal is to let people dive deeper where they have most to contribute, while still feeding into a shared narrative. Both tracks remind us that innovation and governance are not competing agendas but complementary forces.
This block explores how society can be truly empowered in the data and AI era — from practical tools for patients, to transparency and trust, to collaborative platforms, and finally the governance frameworks that enable equitable adoption across health systems.
Through four Lightning Talks, the session will provide complementary perspectives:
Patient empowerment in practice (tools and training) - Finn McCartney (EUPATI)
Data transparency and trust (patients leading the agenda) - Ceri Steele and Chris Carrigan (use MY data)
From Science to Policy: the role of a Global Collaboration Platform in Digital Health - Mirana Randriambelonoro (Chief Technology Officer, gdhub, Switzerland) | online
Policy and interoperability (frameworks to scale empowerment and collaboration) - Catherine Chronaki, HL7 Europe | online
World Café # 2 Together, these talks will set the stage for a World Café dialogue, where delegates will translate insights into actionable recommendations on literacy, transparency, collaboration, and governance frameworks.
As Day 1 comes to a close, this session is the space to connect the dots. The goal is to blend perspectives from social care and global standards, reminding us that innovation only matters if it reaches people's lives. Rather than summing up, it sets a tone of curiosity for Day 2: what must we carry forward, and what new questions have emerged?
Join Lisa Trigg (Social Care Wales) and Andrew Roddam (SNOMED International) for an engaging conversation on how health, social care, and data ecosystems can work together to deliver better outcomes for people and communities. This dialogue will highlight practical examples of collaboration, the role of standards and governance, and the importance of aligning across sectors to tackle complex health challenges.
Why it Matters: This block connects innovation and society by exploring how patient empowerment, data transparency, global collaboration, and advanced therapies can be scaled ethically and effectively. It closes Day 1 with cross-sector reflections that highlight how health, social care, and data ecosystems must align to achieve societal impact.
Objective: To give participants actionable insights into the dual forces shaping healthcare: societal empowerment (patients, data, governance) and scientific innovation (real-world outcomes in advanced therapies). By combining these streams and converging in dialogue, the session equips all summit members to apply lessons in both policy and practice.
Catherine E. Chronaki (DiplEng, MSc) is Secretary General of HL7 Europe, based in Brussels, and a leading voice in digital health policy and standardization. She has coordinated or contributed to numerous European and international initiatives advancing interoperability, patient summaries, and open standards, including xShare, Gravitate-Health,...
Dr Hannah Crocker is the Advanced Therapy Medicinal Products (ATMP) Outcomes Programme Manager at the NHS Wales Joint Commissioning Committee (NWJCC). Hannah's expertise in the field of advanced therapies developed through her PhD and Postdoctoral research at the University of Bristol, which spanned molecular biology, baculovirus technologies and...
Ceri Steele is an Executive Group Member at use MY data, advocating for patient-driven data transparency from her perspective as an oesophageal cancer survivor, diagnosed in October 2019. Her work emphasizes empowering patients through transparent and ethical health data use, contributing to policy and public engagement initiatives.
Chris Carrigan is the Data Adviser at use MY data and part of the Secretariat for use MY data. Chris is a specialist in health data and information, but with a particular focus on patient involvement and patient voice. Chris coordinates and delivers the regular Members Education Sessions, coordinates the responses from Members to large...
Originally from Madagascar, Mirana Randriambelonoro holds a Master degree in Communication Systems from EPFL and a PhD in Information Systems from the University of Geneva. She is the Chief Technology Officer of the Geneva Digital Health Hub and is also part of the HI5Lab group (Health Informatics for Innovation, Integration, Implementation and...
Finn McCartney is the Project Coordinator for the Health Technology Assessment for Patients (HTA4Patients) and Genomic Research and Environment Group (GREG, WP7) projects at the European Patients' Academy on Therapeutic Innovation (EUPATI). With a background in patient advocacy and health policy, he drives patient-centred initiatives, enhancing...
Andrew Roddam, Chief Strategy Officer at EveryONE Medicines and Chair of SNOMED International's Management Board since October 2024, is a renowned epidemiologist with over 25 years of experience in life sciences. Holding a DPhil in Statistics from the University of Oxford, Dr Roddam has led real-world data and epidemiological initiatives at GSK,...
Lisa Trigg, PhD, Director of Improvement and Development, Social Care Wales. Lisa Trigg leads improvement and development at Social Care Wales. With a PhD from the London School of Economics, where she researched international approaches to long-term care quality and regulation, she brings deep expertise in data-driven policy and practice. Lisa's...
