16:00 – 17:00 | Empowering Society: Engagement & Policy
This block explores how society can be truly empowered in the data and AI era — from practical tools for patients, to transparency and trust, to collaborative platforms, and finally the governance frameworks that enable equitable adoption across health systems.
Through four Lightning Talks, the session will provide complementary perspectives:
Patient empowerment in practice (tools and training). Finn McCartney (EUPATI)
Data transparency and trust (patients leading the agenda).Ceri Steele and Chris Carrigan (use MY data)
Collaboration across borders (platforms and innovation ecosystems).Mirana Randriambelonoro (Chief Technology Officer, gdhub, Switzerland)
Policy and interoperability (frameworks to scale empowerment and collaboration)..Catherine Chronaki HL7 Europe
Together, these talks will set the stage for a World Café dialogue, where delegates will translate insights into actionable recommendations on literacy, transparency, collaboration, and governance frameworks.
17:00 - 17:30 | Closing Fireside Chat: Cross-Sector Collaboration for Societal Health
Join Lisa Trigg (Social Care Wales) and Andrew Roddam (SNOMED International) for an engaging conversation on how health, social care, and data ecosystems can work together to deliver better outcomes for people and communities. This dialogue will highlight practical examples of collaboration, the role of standards and governance, and the importance of aligning across sectors to tackle complex health challenges.
Catherine E. Chronaki (DiplEng, MSc) is Secretary General of HL7 Europe, based in Brussels, and a leading voice in digital health policy and standardization. She has coordinated or contributed to numerous European and international initiatives advancing interoperability, patient summaries, and open standards, including xShare, Gravitate-Health,...
Hannah brings her expertise in molecular biology, renal medicine, and gene therapies into her current leadership role at NHS Wales JCC. Her keynote will open the Trends House by framing how real-world data and patient-reported outcomes are transforming commissioning decisions and the delivery of ATMPs in Wales.
Ceri Steele is an Executive Group Member at use MY data, advocating for patient-driven data transparency from her perspective as an oesophageal cancer survivor, diagnosed in October 2019. Her work emphasizes empowering patients through transparent and ethical health data use, contributing to policy and public engagement initiatives.
Chris Carrigan is the Data Adviser at use MY data and part of the Secretariat for use MY data. Chris is a specialist in health data and information, but with a particular focus on patient involvement and patient voice. Chris coordinates and delivers the regular Members Education Sessions, coordinates the responses from Members to large...
Dr. Mirana Randriambelonoro, originally from Madagascar, is a digital health expert at the Geneva Digital Health Hub, specialising in health informatics, AI-driven interventions, and data standards. Holding a Master's in Communication Systems from EPFL and a PhD in Information Systems from the University of Geneva, she has contributed to...
Finn McCartney is the Project Coordinator for the Health Technology Assessment for Patients (HTA4Patients) and Genomic Research and Environment Group (GREG, WP7) projects at the European Patients' Academy on Therapeutic Innovation (EUPATI). With a background in patient advocacy and health policy, he drives patient-centred initiatives, enhancing...
Andrew Roddam, Chief Strategy Officer at EveryONE Medicines and Chair of SNOMED International's Management Board since October 2024, is a renowned epidemiologist with over 25 years of experience in life sciences. Holding a DPhil in Statistics from the University of Oxford, Dr Roddam has led real-world data and epidemiological initiatives at GSK,...
Lisa Trigg, PhD, Director of Improvement and Development, Social Care Wales. Lisa Trigg leads improvement and development at Social Care Wales. With a PhD from the London School of Economics, where she researched international approaches to long-term care quality and regulation, she brings deep expertise in data-driven policy and practice. Lisa's...
Why it Matters: This block connects innovation and society by exploring how patient empowerment, data transparency, global collaboration, and advanced therapies can be scaled ethically and effectively. It closes Day 1 with cross-sector reflections that highlight how health, social care, and data ecosystems must align to achieve societal impact.
Objective: To give participants actionable insights into the dual forces shaping healthcare: societal empowerment (patients, data, governance) and scientific innovation (real-world outcomes in advanced therapies). By combining these streams and converging in dialogue, the session equips delegates to apply lessons in both policy and practice.
Differentiation: Unlike mass summits and trade shows, this programme is not about volume or exhibition floors. Instead, it offers curated, dialogue-driven sessions where leaders and practitioners engage directly with one another. The combination of Lightning Talks, World Cafés, and Fireside Chats ensures that ideas are not just presented, but translated into collective insights and actionable recommendations. This makes the Health Data Forum Summit a neutral space for collaboration rather than a marketplace.
